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	<title>Comments on: [cancer&#124;conventions] Schedules, short term and long</title>
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	<link>http://www.jlake.com/2010/01/29/cancerconventions-schedules-short-term-and-long/</link>
	<description>Jay Lake&#039;s Official Web Site</description>
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		<title>By: Elspeth Kovar</title>
		<link>http://www.jlake.com/2010/01/29/cancerconventions-schedules-short-term-and-long/comment-page-1/#comment-10350</link>
		<dc:creator>Elspeth Kovar</dc:creator>
		<pubDate>Fri, 26 Feb 2010 20:12:15 +0000</pubDate>
		<guid isPermaLink="false">http://www.jlake.com/?p=10946#comment-10350</guid>
		<description>The WFC is tangential but I&#039;ll pass along what I have - 

People more experienced are now more active on this WFC, which I found out at Boskone because both Hartwell and one of these people were there.  As an aside I was well prepared to chew out either or both (yes, I&#039;ve chewed Hartwell out on WFC matters) and glad I didn&#039;t have to take the time.

The main part of Hartwell&#039;s concerns was already taken care of: you can now register online.  The rest of the website isn&#039;t active yet but while they should get the boilerplate up it is boilerplate.</description>
		<content:encoded><![CDATA[<p>The WFC is tangential but I&#8217;ll pass along what I have &#8211; </p>
<p>People more experienced are now more active on this WFC, which I found out at Boskone because both Hartwell and one of these people were there.  As an aside I was well prepared to chew out either or both (yes, I&#8217;ve chewed Hartwell out on WFC matters) and glad I didn&#8217;t have to take the time.</p>
<p>The main part of Hartwell&#8217;s concerns was already taken care of: you can now register online.  The rest of the website isn&#8217;t active yet but while they should get the boilerplate up it is boilerplate.</p>
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		<title>By: Cora</title>
		<link>http://www.jlake.com/2010/01/29/cancerconventions-schedules-short-term-and-long/comment-page-1/#comment-8816</link>
		<dc:creator>Cora</dc:creator>
		<pubDate>Sun, 31 Jan 2010 00:16:26 +0000</pubDate>
		<guid isPermaLink="false">http://www.jlake.com/?p=10946#comment-8816</guid>
		<description>You&#039;d still have to pay some costs out of pocket in Germany, e.g. the daily hospital fee, &quot;Praxisgebühr&quot; (quarterly fee of 10 Euros to be paid once per quarter when someone dares to seek medical attention), probably some kind of medicine surcharge and you&#039;d have to pay for things like better anti-nausea drugs out of pocket. But you&#039;d still not have to pay nearly as much out of pocket as you do now and you&#039;d not have to fear job loss or lifetime maximums. 

The German system has its share of problems, e.g. contraceptives and abortions are never covered by health insurance (but viagra and fertility treatments are), that bloody &quot;Praxisgebühr&quot;, glasses are no longer covered at all and only the most basic of dental work. Plus, we have a few newly in power neo-liberals (probably what you&#039;d call libertarians in the US) chopping away at the healthcare system. But it&#039;s still vastly preferable to the completely mess-up US system.

And regarding conservatives (and neo-liberals/libertarians), I completely agree.</description>
		<content:encoded><![CDATA[<p>You&#8217;d still have to pay some costs out of pocket in Germany, e.g. the daily hospital fee, &#8220;Praxisgebühr&#8221; (quarterly fee of 10 Euros to be paid once per quarter when someone dares to seek medical attention), probably some kind of medicine surcharge and you&#8217;d have to pay for things like better anti-nausea drugs out of pocket. But you&#8217;d still not have to pay nearly as much out of pocket as you do now and you&#8217;d not have to fear job loss or lifetime maximums. </p>
<p>The German system has its share of problems, e.g. contraceptives and abortions are never covered by health insurance (but viagra and fertility treatments are), that bloody &#8220;Praxisgebühr&#8221;, glasses are no longer covered at all and only the most basic of dental work. Plus, we have a few newly in power neo-liberals (probably what you&#8217;d call libertarians in the US) chopping away at the healthcare system. But it&#8217;s still vastly preferable to the completely mess-up US system.</p>
<p>And regarding conservatives (and neo-liberals/libertarians), I completely agree.</p>
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		<title>By: Jay</title>
		<link>http://www.jlake.com/2010/01/29/cancerconventions-schedules-short-term-and-long/comment-page-1/#comment-8771</link>
		<dc:creator>Jay</dc:creator>
		<pubDate>Sat, 30 Jan 2010 03:36:00 +0000</pubDate>
		<guid isPermaLink="false">http://www.jlake.com/?p=10946#comment-8771</guid>
		<description>Whereas in America, I am one of the lucky ones. My annual healthcare expenses out of pocket for 2008, 2009 and (estimated) 2010 are about 15-20% of my net income, and that is with good insurance and a generous employer.  That I am salaried, given a fair amount of flexibility, and assisted through this process is an unusual benefit in the overall American workforce, though ordinary enough in white collar employment.  If I were hourly, I&#039;d be toast.

Yes, it&#039;s rough. And that&#039;s me being lucky, well-insured, and with a generous, supportive employer.

You can analyze much of American politics and policy, not just healthcare, by keeping in mind that the guiding principle of virtually all conservatives as well as many others is the dread fear that someone, somewhere, might be enjoying an undeserved benefit at their expense.</description>
		<content:encoded><![CDATA[<p>Whereas in America, I am one of the lucky ones. My annual healthcare expenses out of pocket for 2008, 2009 and (estimated) 2010 are about 15-20% of my net income, and that is with good insurance and a generous employer.  That I am salaried, given a fair amount of flexibility, and assisted through this process is an unusual benefit in the overall American workforce, though ordinary enough in white collar employment.  If I were hourly, I&#8217;d be toast.</p>
<p>Yes, it&#8217;s rough. And that&#8217;s me being lucky, well-insured, and with a generous, supportive employer.</p>
<p>You can analyze much of American politics and policy, not just healthcare, by keeping in mind that the guiding principle of virtually all conservatives as well as many others is the dread fear that someone, somewhere, might be enjoying an undeserved benefit at their expense.</p>
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		<title>By: Cora</title>
		<link>http://www.jlake.com/2010/01/29/cancerconventions-schedules-short-term-and-long/comment-page-1/#comment-8770</link>
		<dc:creator>Cora</dc:creator>
		<pubDate>Sat, 30 Jan 2010 03:24:49 +0000</pubDate>
		<guid isPermaLink="false">http://www.jlake.com/?p=10946#comment-8770</guid>
		<description>This is yet another way in which your situation illustrates the issues with the US healthcare system. Because in most countries with a decent, organized healthcare system, you would not have to work through a course of chemotherapy. Because there would be a system of a period of employer paid sick leave (at full payment), followed by insurance paid sick money (usually a certain percentage of your wages) in place. In Germany, people are routinely absent from work for sometimes weeks and months at a time for ailments that are much less severe than yours. An employer will probably try to get rid of a constantly ill employee (you can&#039;t fire someone outright for illness, but you can get rid of them in the next downsizing or negotiate premature retirement), but losing your job will not automatically lose you your health insurance.

And yes, there are those that abuse the system. But I&#039;d rather put up with a few abusers, then see people forced to work through chemotherapy and other debilitating conditions, because they have to. You might still choose to work - and many do, including cancer patients - but you wouldn&#039;t have to, if the side effects became too severe.</description>
		<content:encoded><![CDATA[<p>This is yet another way in which your situation illustrates the issues with the US healthcare system. Because in most countries with a decent, organized healthcare system, you would not have to work through a course of chemotherapy. Because there would be a system of a period of employer paid sick leave (at full payment), followed by insurance paid sick money (usually a certain percentage of your wages) in place. In Germany, people are routinely absent from work for sometimes weeks and months at a time for ailments that are much less severe than yours. An employer will probably try to get rid of a constantly ill employee (you can&#8217;t fire someone outright for illness, but you can get rid of them in the next downsizing or negotiate premature retirement), but losing your job will not automatically lose you your health insurance.</p>
<p>And yes, there are those that abuse the system. But I&#8217;d rather put up with a few abusers, then see people forced to work through chemotherapy and other debilitating conditions, because they have to. You might still choose to work &#8211; and many do, including cancer patients &#8211; but you wouldn&#8217;t have to, if the side effects became too severe.</p>
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		<title>By: Jay</title>
		<link>http://www.jlake.com/2010/01/29/cancerconventions-schedules-short-term-and-long/comment-page-1/#comment-8752</link>
		<dc:creator>Jay</dc:creator>
		<pubDate>Fri, 29 Jan 2010 15:37:47 +0000</pubDate>
		<guid isPermaLink="false">http://www.jlake.com/?p=10946#comment-8752</guid>
		<description>Thank you, Kai.  Coz, yes, it&#039;s a strange transition.  And even so, I may get to go back...</description>
		<content:encoded><![CDATA[<p>Thank you, Kai.  Coz, yes, it&#8217;s a strange transition.  And even so, I may get to go back&#8230;</p>
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		<title>By: Phiala</title>
		<link>http://www.jlake.com/2010/01/29/cancerconventions-schedules-short-term-and-long/comment-page-1/#comment-8750</link>
		<dc:creator>Phiala</dc:creator>
		<pubDate>Fri, 29 Jan 2010 15:28:57 +0000</pubDate>
		<guid isPermaLink="false">http://www.jlake.com/?p=10946#comment-8750</guid>
		<description>I&#039;m baffled by WFC. It&#039;s within driving distance for me, so I was hoping to go. But their web page is nonfunctional (aren&#039;t those buttons supposed to go somewhere)? And even weirder, I wondered about the lack of functionality on my computer, so I clicked on the web designer&#039;s link at the bottom of the page and was taken to what appears to be a Japanese cosmetics site. Huh?

I know, tangential, but...</description>
		<content:encoded><![CDATA[<p>I&#8217;m baffled by WFC. It&#8217;s within driving distance for me, so I was hoping to go. But their web page is nonfunctional (aren&#8217;t those buttons supposed to go somewhere)? And even weirder, I wondered about the lack of functionality on my computer, so I clicked on the web designer&#8217;s link at the bottom of the page and was taken to what appears to be a Japanese cosmetics site. Huh?</p>
<p>I know, tangential, but&#8230;</p>
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		<title>By: Kai Jones</title>
		<link>http://www.jlake.com/2010/01/29/cancerconventions-schedules-short-term-and-long/comment-page-1/#comment-8749</link>
		<dc:creator>Kai Jones</dc:creator>
		<pubDate>Fri, 29 Jan 2010 14:39:07 +0000</pubDate>
		<guid isPermaLink="false">http://www.jlake.com/?p=10946#comment-8749</guid>
		<description>I understand and have sympathy for the resentment (I have a chronic disease and I remember the first few years after my diagnosis as ones of frustration and denial about how my life had changed).  

I can&#039;t offer you much other than conversation.  If you want to vent, feel free.  I know it has helped me over the years to vent to someone other than the people in my immediate life who are already dealing with the burdens.</description>
		<content:encoded><![CDATA[<p>I understand and have sympathy for the resentment (I have a chronic disease and I remember the first few years after my diagnosis as ones of frustration and denial about how my life had changed).  </p>
<p>I can&#8217;t offer you much other than conversation.  If you want to vent, feel free.  I know it has helped me over the years to vent to someone other than the people in my immediate life who are already dealing with the burdens.</p>
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		<title>By: Jay</title>
		<link>http://www.jlake.com/2010/01/29/cancerconventions-schedules-short-term-and-long/comment-page-1/#comment-8748</link>
		<dc:creator>Jay</dc:creator>
		<pubDate>Fri, 29 Jan 2010 14:32:54 +0000</pubDate>
		<guid isPermaLink="false">http://www.jlake.com/?p=10946#comment-8748</guid>
		<description>I could go on short-term disability at work (up to six months), but I&#039;d lose about 40% of my income doing so during that period.

Except by draining my retirement funds, I don&#039;t have anything remotely approaching the financial resources for six weeks of unpaid leave, let alone seven or eight months of either unpaid leave or short-term disability.

I&#039;m the sole wage earner for two adults and a child, and our capital and long term savings were pretty much wiped out in the dot com crash, have never come back effectively because my income levels have never recovered.</description>
		<content:encoded><![CDATA[<p>I could go on short-term disability at work (up to six months), but I&#8217;d lose about 40% of my income doing so during that period.</p>
<p>Except by draining my retirement funds, I don&#8217;t have anything remotely approaching the financial resources for six weeks of unpaid leave, let alone seven or eight months of either unpaid leave or short-term disability.</p>
<p>I&#8217;m the sole wage earner for two adults and a child, and our capital and long term savings were pretty much wiped out in the dot com crash, have never come back effectively because my income levels have never recovered.</p>
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		<title>By: Meran</title>
		<link>http://www.jlake.com/2010/01/29/cancerconventions-schedules-short-term-and-long/comment-page-1/#comment-8747</link>
		<dc:creator>Meran</dc:creator>
		<pubDate>Fri, 29 Jan 2010 14:28:17 +0000</pubDate>
		<guid isPermaLink="false">http://www.jlake.com/?p=10946#comment-8747</guid>
		<description>Honestly, I&#039;m surprised you couldn&#039;t / didn&#039;t take time off to do the entire treatment time period... Working while even between treatments sucks in so many ways.</description>
		<content:encoded><![CDATA[<p>Honestly, I&#8217;m surprised you couldn&#8217;t / didn&#8217;t take time off to do the entire treatment time period&#8230; Working while even between treatments sucks in so many ways.</p>
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		<title>By: Meran</title>
		<link>http://www.jlake.com/2010/01/29/cancerconventions-schedules-short-term-and-long/comment-page-1/#comment-8746</link>
		<dc:creator>Meran</dc:creator>
		<pubDate>Fri, 29 Jan 2010 14:22:16 +0000</pubDate>
		<guid isPermaLink="false">http://www.jlake.com/?p=10946#comment-8746</guid>
		<description>I&#039;ve been on the goal setting only plan for about 12 yrs now, and yes, still resenting it, tho I&#039;ve been Forced into the Acceptance Contract.
I, too, had a very long production day. Now, the days I get one major thing done is a good day (I got tired of the constant frustration)
maybe you can think of it as temporary adjustment, knowing the end is in sight (go look at that row of bottles,,, mine would be neverending; yours all fit on your mantle). Be happy that you have what you do! Living w frustration only feeds the cancer :D
take deep breaths
and yes, recliner sleeping works... also white noise (have you got an air filter?)</description>
		<content:encoded><![CDATA[<p>I&#8217;ve been on the goal setting only plan for about 12 yrs now, and yes, still resenting it, tho I&#8217;ve been Forced into the Acceptance Contract.<br />
I, too, had a very long production day. Now, the days I get one major thing done is a good day (I got tired of the constant frustration)<br />
maybe you can think of it as temporary adjustment, knowing the end is in sight (go look at that row of bottles,,, mine would be neverending; yours all fit on your mantle). Be happy that you have what you do! Living w frustration only feeds the cancer <img src='http://www.jlake.com/wp-includes/images/smilies/icon_biggrin.gif' alt=':D' class='wp-smiley' /><br />
take deep breaths<br />
and yes, recliner sleeping works&#8230; also white noise (have you got an air filter?)</p>
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