[cancer] An update and an overview

Horrid night’s sleep. Given that I slept 9-10 hours per night the previous three nights, this is perhaps unsurprising, but still a real disappointment. Going to be a bad day.

In a larger sense, I’m now 2/3 done. Eight chemo infusion sessions out of twelve. Four more to go, currently expected to end on June 18th, assuming I don’t have to postpone any due to dropping white blood cell counts or other side effects. Every infusion session is identical in terms of medication and protocol, every infusion session is different in terms of practice and side effects. I am getting better at this, but it’s tough.

I track the side effects in a spreadsheet. I rate each by intensity, trend and specific experiences. Here’s everything I’ve registered thus far:

  • Headache
  • Confusion
  • Extreme fatigue
  • Oversleeping
  • Undersleeping
  • Sleep dysfunction
  • Bowel distress/constipation
  • Bowel distress/severe diarrhea
  • Peripheral neuropathy
  • Cold sensitivity
  • Impaired short term memory
  • Impaired long term memory
  • Impaired thinking skills
  • Slowed thinking skills
  • Impaired reading
  • Dyscalculia
  • Impaired observation/EQ
  • Loss of appetite
  • Food ‘crashes
  • Nausea
  • Sexual dysfunction
  • Excessive dental plaque
  • Excessive ear wax
  • Hoarseness
  • Tissue in stool
  • Nasal sores
  • Nose bleed
  • Mouth sores
  • Mouth pain
  • Emotional ‘crashes’

Some of the side effects are cumulative, some are stable, some are episodic. I keep meaning to make a chart, to document the experience more fully. But I’m always too damned tired. Fatigue is the killer.

I am sick and tired of being sick and tired.

3 thoughts on “[cancer] An update and an overview

  1. Lorna Toolis says:

    I’m sorry to read about the lousy bits of life, as above. I just read your book, Green, and really liked it.

    Lorna Toolis
    Merril Collection

    1. Jay says:

      Thank you

  2. John says:

    I’ve some how stubbled across your website while googling some problems I’ve had with apple and couldn’t help but notice this section. My grandpa has battled cancer his entire life, he’s beaten it once several years ago and it has just recently returned. I just wanted to wish you luck with everything that your having to endure right now. I’m 17 but I can only imagine what your going through. Just keep your head up no matter how tough shit gets. Having the right set of mind is the only way you can tackle something like this. Sincerly, John from NC

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