[cancer] Side effects bingo slowly goes higher stakes

As I have recently complained, I am growing more affected by the Regorafenib. Hair loss, skin conditions, easier wounding, slower healing, localized infections of minor wounds, and so forth. It’s also been the case in this cycle that the GI effects have grown worse.

Under cut for medical and digestive TMI.

Yesterday I had almost two dozen bowel movements. About half of them were fully productive, of the sort that would have been sufficient once or twice a day in my pre-cancer days. All of them were somewhat productive. Not diarrhea, in that I was not producing liquid stool or at high pressure. Just lots and lots and lots and lots of feces.

Simply considering time spent on the toilet, this was my worst GI day ever. Worse even than on the various intravenous chemotherapy regimens I have spent the last four years enjoying.

I have two different medications I can take to slow or stop this. But I’d spent the previous two days on those medications, bottling myself up so I could make the trip to Maryland. I cannot take them continuously or I become horrendously, painfully constipated. Plus, well, the stuff has to come out somehow, at some point.

So I hid in our hotel room yesterday and struggled with violent cramps, sometimes three or four times per hour.

This is gradually growing more and more difficult to tolerate. Given that my alternative is a fairly quick death, everything I’m experiencing is just the cost of doing the business of life. But it’s making me weaker, more tired, and more physically stressed.

Fuck cancer.

8 thoughts on “[cancer] Side effects bingo slowly goes higher stakes

  1. Laurie Mann says:

    Sorry you’re having so much trouble with your drugs.

  2. Kate Baker says:

    Jay, I wish there were something I could offer in the form of words which would provide relief or comfort but please know you are in my thoughts on a daily basis and that you are loved. Not many people have the endless well of strength from which you draw despite the cost. Each day is a victory and yes, fuck cancer. Hugs.

  3. Jaws says:

    Well, if you drive up the coast to Wurtemburg University in Maryland, you’re all set to nail 93 feces to the door…

    Really. Couldn’t you see that setup coming?

  4. Ben Fenwick says:

    Yeah, fuck cancer. Sorry man.

  5. Harald Striepe says:

    Well, shit…
    Not funny. After my colectomy, I have more movements as part of the normal process – especially annoying at night.
    But nothing like that. All you can do is go with the flow I guess…
    Platitudes don’t help, but express commiseration and compassion.

  6. Cora says:

    This sounds awful. Sorry you’re going through all this.

  7. Wendy says:

    I was fighting against a stage IV cancer and i won, lucky my husband who helped me all the time.I think it is very important that family support to win, because i was very weak;really helped me participate in one group of victims of cancer, so my mood improved, also helped me a adviser of advisercancer-diseases.com.I recomended not surrender, because sometimes the first treatment does not work as me, and change doctors if it is necessary.Read positive thinking books gave me more energy.During my cancer,i changed my diet,now i eat vegetarian organic food(now i not eat meat).I think is a set of things that help me.
    Xoxo
    Wendy

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