[cancer|personal] Dancing the NIH boogie

As I said yesterday on my social media stream:

Things continue to unfold in good-but-complicated ways at NIH. I am not VagueBooking, but respecting confidentiality. Details when I can.

No, NIH has not found a cure for cancer behind the couch. Not that good, believe me. But in terms of access, process and treatment opportunities, this trip so far has been much more rewarding than even my brightest hopes for the process. As I said yesterday, I’m not yet prepared to discuss the details, because I’m not sure of the confidentiality boundaries of the various research groups I’m engaged with, but when I can, I will.

And I have to say, NIH’s internal processes are unlike anything I’ve ever encountered in healthcare. Of course, NIH is not a healthcare institution, it’s a research institution.

Back at it today.

7 thoughts on “[cancer|personal] Dancing the NIH boogie

  1. Cory Skerry says:

    Whether it yields what we all wish it will or not, I’m glad you’re getting the opportunity to feel hope. I know sometimes you feel like it’s been completely vacuumed out of you, and I only have it because I’m in an insane amount of denial. But you deserve to be excited about your options, and also to have cool science secrets you can lord over us. 😉

  2. Laurie Mann says:

    Since cancer is such a complicated disease, it’s good that the NIH is researching SOMETHING that might turn out to be helpful to you.

  3. Gillian B says:

    It might be confidential, but when you do start sprouting tentacles, won’t you at least show us the pictures?

  4. It is about fucking time for something to be better than you hoped….

  5. MightyCasey says:

    Delighted to hear good-but-complicated. Adding “hope” makes it a daily double.

  6. Stevie says:

    This is good news, and I am so glad that you are having the opportunity to engage in the process. Fingers are crossed on my side of the Pond for your entry into a suitable trial…

  7. Cora says:

    Happy new year, Jay. Glad to hear that things are looking up for you.

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