We heard back from the docs at NIH, and the news isn’t good. The treatment is not working, so they’ve released Jay back to the care of his doctors at OHSU.
We are working with his palliative care doc and a team of hospice workers to make Jay as comfortable as possible for as long as he has. We’re still hoping to build up his strength as much as possible, but that’s the most we are trying to accomplish other than comfort.
People have been asking about visiting Jay. All I can say at this point is: we’re working on it. His energy level is extremely low, and visitors drain him terribly. I think it is this right now that is breaking my heart the most, how this most social and gregarious of men has been drained to the point where a simple conversation is exhausting.