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[trave] In the USA

Depends om hour ponit of view.

Flying from DCA (where I’ve been treated) to PDX (where I live) is like flying than the mileage from London to Eastern Turkmenistan. I simply could not find a simpler “Europe is This Small” illustration. while DC and Portland aren’t nearest the farthest apart in the Lower Forty-eight. Throw in Alaska, Hawaii, Purto Rico, U.s Virgin Islands, American Samoa and the odd bits of rick here there are everywhere, you go a long way in this country on domestic flight.

Which is my have had so much trouble flying these pat two go-rounds. Sitting coach for 5-6 hours is barking mad even with anyone’s knees, let alone my various surgical and digestive issues.

It a running gag that Europeans have history while Americans have geography. I just hope yose guys across te pond are smarter.

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[NIH Day 15]

Buy here but winding down now int recovery period. I’m still fat fingering most f what I try to type. This post absolutely included.

Friday midday I received 43.3 billion of my TIL cells infused back to me. A while raft of helper drugs came with, notably IL-2. I lasted 4 doses of iL-2, and was willing to tolerate more, but the doctors thought I was already at risk of serious lung and kidney issues from drug.

More to come I have it, not to mention recovering some of my writing skills. This post took over 30 minutes to compose on a full sized keyboard. Ah, cancer.

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[cancer] Quick update on Jay

He’s been sleeping soundly, and is awake at the moment getting vitals done. He’s survived 5 3 doses of IL-2. Awaiting news from the doctors about continuing the dosing.

Edited later to fix my misunderstanding of the number of doses.

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[cancer] NIH Day 10

Getting overwhelmed fast here. Yesterday was busy and spoon-burning both. An hour of deep science talk with Dr. Tranh about how the genetic selection of my TIL cells was done, and why, was sort of like a Masters degree in a bottle. I will report that when I can. (Notes were taken.) A 75-minute EMDR session to deal with my aggressive emergent food aversion gifted unto me by the cyclophosphamide. Likewise to be described. The massage therapist turning up. And the intensity of treatment dialing up sharply last night, half a day ahead of what I had expected.

Oddly, I got a good nights sleep.

The dance begins in earnest at noon today, with the TIL cell infusion. I do not expect to be able to blog or function on social media effectively after today for a while. I will either be silent, or possibly have Lisa make posts if need be. Expect erratic posting until further notice.

Overwhelming.

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[photos] Your Friday moment of zen

Your Friday moment of zen .

IMG_4467.JPG

Flower, University of Wyoming campus, during the Launch Pad workshop. Photo © 2008, 2014, Joseph E. Lake, Jr.

Creative Commons License

This work by Joseph E. Lake, Jr. is licensed under a Creative Commons Attribution-Noncommercial-Share Alike 3.0 United States License.

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[links] Link salad gets busy with the medical crud

Seven Deadly Sins + Math — Hahah. (Via [info]threeoutside.)

Silence Is Now a Luxury ProductA report on the quiet-car-ization of America. (Via AH.)

You’re Drinking the Wrong Kind of Milk — Moo.

Crazy living rock is one of the weirdest creatures we’ve ever seen — I guess it’s a coral, sort of? Weird stuff. (Via [info]scarlettina.)

Alien-Looking Skeleton Poses Medical Mystery — Cool, but, uh, yeah. (Via [info]scarlettina.)

Clinical Whole Genome Sequencing: Not Quite Ready for Prime Time? — (Via AH.)

Do Neutrinos Change Flavor at Night?

Getting the math of the Universe to cancel outNew modification to gravity may explain the cosmological constant.

Who Should Name the Craters on Mars, You or Astronomers? — (Thanks to David Goldman.)

MIT’s New Robotic Fish Can Change Direction As Rapidly As A Real Fish

German Robot Pole Dancers! — Because reasons! (Thanks, I think, [info]danjite.)

Science Graphic of the Week: Bombogenesis, the Most Extreme Weather This Winter — (Thanks to David Goldman.)

Interactive Map Shows Impact of WWII Firebombing of Japan, If It Had Happened on US Soil — Wow… (Via [info]shsilver.)

The Way We Live Now — Yup. You will know that they are Christians by their love.

Oklahoma FOX Affiliate Edited Evolution Out of ‘Cosmos’ By Removing 15 SECONDS of Footage — Exactly why I was appalled to see such a wonderful show come back on such a terrible network. FOX is not the natural home for anything evidence-based, whether’s it’s honestly reported news or actual science.

Ohio State Rep: ‘Public Education In America Is Socialism, What Is The Solution?’ — Conservatives in their own words. Poe’s Law would apply, except speaker intent is clear by his position. By the way, this guy is vice-chair of the Ohio House Education Committee. “Is our children learning?”, to quote another very prominent conservative.

Guns May Soon Be Everywhere in GeorgiaSoon gun owners in the state of Georgia may be allowed to pack heat almost anywhere—including K-12 schools, bars, churches, government buildings, and airports. The “Safe Carry Protection Act” (HB 875) would also expand Georgia’s Stand Your Ground statute, the controversial law made famous by the Trayvon Martin killing, which allows armed citizens to defend themselves with deadly force if they believe they are faced with serious physical harm. What could possibly go wrong!?

Republican Family Values — A missive from the Oregon GOP. The Republican Party is proud to be known as the party of liberty. As the party of freedom, we believe that Americans should be free to live their lives as they wish, so long as they do not impede the freedom of others to do so. Therefore they support a gay marriage ban. This doesn’t pass the logic level of a fourth-grade class debate, let alone rise to the basic standards of American citizenship. Conservatives…

Food stamps: Oregon becomes fourth state to avoid farm bill cuts — That’s called compassion, and constituent service. Much less effective at generating more angry white guys than grandstanding against anything that might make Obama look good, but that’s conservative priorities for you. I like living in a (relatively) sane Blue State where the public good can at least sometimes trump partisan self-interest.

Foreign Officials In the Dark About Their Own Spy Agencies’ Cooperation with NSA

?otD: Got IV?


3/14/2014
Writing time yesterday: 0.0 hours (chemo brain)
Hours slept: 8.0 hours (almost solid, some daytime napping)
Body movement: 0 minutes (hall walking to come)
Weight: n/a
Number of FEMA troops on my block teaching wives how to be submissive: 0
Currently reading: n/a (chemo brain)

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[cancer] NIH Day 9

Yesterday was a weird day. Very tough in some ways, easy in others. I was quite discouraged to jump from a one-hour infusion to about six hours of infusion due to reduced electrolytes, but since I have been eating almost nothing, well, duh, I guess. It was supposed to be sort of a day off.

The food aversion problem continues to get a little better, but not soon enough. And I accidentally gave myself a setback. Also, spoke at length to the EMDR specialist here, who is going to start working with me today to see about reconditioning me back to being able to take solids and fluids by mouth easily. Right now it’s very tough, a result of last weekend’s cyclophosphamide infusion being so terribly hard on my upper GI. I’m pretty sure Dad was fascinated by the EMDR guy and the intake process, which he witnessed almost all of.

Also, a rocking rash all over my chest from the adhesives in the dressing. I tell people and tell people I react to medical adhesives. but nobody ever does anything until after the problem presents. This happens with every new clinical. Sort of like my eternal conversation about why I really, really don’t tolerate opiates well, and no, I’m not crying “wolf”.

I walked outside the ward more, which was as much about boredom as anything else. Various of us had some good chats, but I’m mostly too unfocused to read or watch Netflix or hop on the phone.

Meanwhile, this morning was the last of my kamikaze chemo sessions. One of the doctors reluctantly confirmed that the cyclophosphamide which knocked me back so hard was basically mustard gas. That gave me a whole new perspective on WWI, I can tell you. I start the TIL infusions tomorrow around noon, and the IL-2 infusions tomorrow evening.

I am still afraid.

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[photos] Your Thursday moment of zen

Your Thursday moment of zen .

IMG_4464.JPG

Flower, University of Wyoming campus, during the Launch Pad workshop. Photo © 2008, 2014, Joseph E. Lake, Jr.

Creative Commons License

This work by Joseph E. Lake, Jr. is licensed under a Creative Commons Attribution-Noncommercial-Share Alike 3.0 United States License.

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[links] Link salad still wishes it slept better

Graphing Depression and Anxiety — Jim C. Hines is wise about writing productivity in the face of such widespread challenges.

Candlemen — A character type based on Mainspring. Very cool.

The Paintings of Jason de Graaf — Wow, the light work. I hope this guy is doing SF and fantasy covers. (Via [info]willyumtx.)

Presenting the Mid-Century Modern… toothbrush — Because advertising circa 1949.

Fascinating Old Maps of Both Real and Ridiculous NYC Transit Projects — Cool beans. Some alt.hist here. (Via David Goldman.)

22-Pound Housecat Who Trapped Owners After Attacking Baby To Get Therapy — I don’t think it’s the cat that needs therapy. Ah, Portland. (Via Lisa Costello.)

New Jersey Bans Tesla to Ensure Buying a Car Will Always Suck — Ah, the New Jersery Auto Dealer Preservation Act, to better serve your needs without competitive pressure from new business models.

T. rex Had a Small, Cute Cousin — Uh…

First thin films of spin ice reveal cold secrets

U of A solves deep-Earth water mysteryTesting on the tiny mineral sample proves there is water about 400 to 700 kilometres below the Earth’s surface.

The Unfrozen North — Nothing to see here, citizen. Move along.

Recent estimates of low climate sensitivity were flawedBetter accounting for aerosols shows CO2 just as potent as we thought. This is how climate science works. New and contradictory data is absorbed and accounted for, and theories are adjusted. It’s science, after all.

Principled bigotry is still, you know, bigotry — Confidential to religious conservatives in America: Listen up. (Via Slacktivist Fred Clark.)

Mississippi, Louisiana, Georgia top list of gay-porn watching states — Because good conservative Red State morality trumps Blue State liberal degeneracy, that’s why.

Couple from Black Earth church convicted of child abuse — Ah, the magic of sincerely held religious beliefs. Which really are not a get-out-of-jail-free card for criminal conduct or outright immorality, the fevered dreams of religious conservatives in their persecution of gays and women notwithstanding. (Via Slacktivist Fred Clark.)

Why We Hate Corporations

The Triumph Of Arrant Bullshit On The Affordable Care Act{T]his quote is immeasurably tragic. It represents a kind of final victory for mean-spirited and uncharitable propaganda over reality, a triumph for misinformation, sabotage, and arrant bullshit in the service of a cruel ideology and faceless oligarchy.

?otD: Yawn much more?


3/13/2014
Writing time yesterday: 0.0 hours (chemo brain)
Hours slept: 6.0 hours (badly interrupted, some daytime napping)
Body movement: 0 minutes (hall walking to come)
Weight: n/a
Number of FEMA troops on my block teaching wives how to be submissive: 0
Currently reading: n/a (chemo brain)

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[dreams|culture] My chemo-addled mind on pop culture

Weird have been my dreams of late. Ah medication and stress, those twinned servants of the entelechy of dreams.

Last night I didn’t just get a few postcards from my subconscious. I got a whole truckload 70mm CinemaScope reels shot on expired TechniColor film stock, complete with house posters and lobby standees. (Hmm, when I die, maybe I should continue going to conventions as a standee. Anyone want to take on carrying me around?)

At any rate, I enjoyed an hour long series of linked dream vignettes that was rather like watching Heavy Metalimdb ] by way of Moorcock’s Eternal Champion cycle. Sturm und drang, world-ending battles, dead peasants everywhere, myself in various guises, genders and ethnic modalities struggling to save the world over and over again, and mostly losing. All the way through, I always knew that I had lost or was going to lose. People implored me to stop.

On the plus side, my late uncle-by-marriage Big Jay McMinnis made an appearance as a Cherokee centaur. That would be Big Jay as I knew him in the early seventies, loose, wild and free, before he divorced my aunt and that bitter, judgmental form of churchiness ate his brain. The younger Big Jay would have approved. The later Big Jay would have been appalled. (And no, I was not named for him, my aunt did not even meet him until some years after I was born.)

So yeah, pop culture filter through the chemo-addled brain. Another funny bit popped up yesterday as well. Many years ago, I was a happy member of the Slug Tribe writing group in Austin, Texas. We met two Tuesdays a month in a community center conveniently located not far from my then-house. The room next door to ours was occupied by a Latin dance class. They would begin dancing to Santana’s version of “Oye Como Va”, and stop after the first few bars while (presumably) the teacher fussed at people. I have forever associated the opening of that song with delivering and receiving writing critique.

Funny, the things that come back to you.

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