Jay Lake: Writer

Contact Me Home
>

[photos] JayCon weekend

Here, finally, are photos from various sources of all the fun at JayFest and JayCon and times in between. Thank you to everyone who turned out and was a part of this.

IMG_7397
Me at JayFest

Read the rest of this entry »

Tags: , , , , ,

[links] Link salad is a jelly donut

Cliches and other chatter keeps our minds from thinkingLisa Costello with some further thoughts on my progress through what remains of my life.

More JayCon photos

Cancer gene sequencing effort struggles through waves of false IDsMuscle proteins, smell receptors show up in some putative lists.

3-D Printer Brings Dexterity To Children With No Fingers — Oh, wow. (Via Melissa Shaw.)

Kenner’s Daddy Saddle. It seemed like a good idea at the time. — Presented without further comment.

Classical sculptures dressed as hipsters look contemporary and totally badass — Hah! (Via Lisa Costello.)

How Cities Compost Mountains of Food Waste

Laser Scanning Reveals New Parts of an Ancient Cambodian City

Sky trains, super bridges: 8 of the world’s most spectacular infrastructure projects

7 worst international aid ideas — Yup. (Via [info]danjite.)

Climate change threatens trouble in the near future, World Bank says The World Bank is beginning to commit billions of dollars to flood prevention, water management and other projects to help major Asian cities avoid the expected impact of climate change, a dramatic example of how short the horizon has become to alleviate the effects of global warming. It’s amazing, how virtually every scientist, economist and politician in the world outside of American conservative circles has fallen for the liberal propaganda of climate change. Even the oceans themselves have been fooled. Thank God for Rush Limbaugh and the Republican Party keeping the flame of truth alive, eh?

Jindal: “Deal With It”Republicans are the conservative party in America, but it’s a party that has little or nothing to offer to middle- and working-class Americans, its latest period of unified government was disastrous, and over at least the last twelve years it has alienated millions of people through a combination of incompetence and ideology.

GOP congressman: I oppose abortion because fetuses masturbate — The conservative mind is a wonder to behold. These people actually get elected. By actual voters. Amazing.

QotD?: Berliner, anyone?


6/19/2013
Writing time yesterday: 1.25 hours (WRPA, mostly editorial work on METAtropolis: Green Space)
Hours slept: 5.25 hours (fitful)
Body movement: 0.5 hours (stationary bike)
Weight: 247.8
Number of FEMA troops on my block installing Islamic footwashing sinks: 0
Currently reading: Real Happiness: The Power of Meditation: A 28-Day Program by Sharon Salzberg; Unseen Academicals by Terry Pratchett

Tags: , , , , , , , , , , , , , , , ,

[photos|events] A bit more of JayCon XIII

I still don’t have a coherent set of JayCon photos, but Narrow Path Photography was there, and did a wonderful job of documenting the event.

Jay and Lisa, (c) 2013 Narrow Path Photography

Jay and Debra, (c) 2013 Narrow Path Photography

The Child and Bob Brown, (c) 2013 Narrow Path Photography

Check out the whole set.

Photos © 2013 Narrow Path Photography, all rights reserved.

Tags: , , , , , ,

[cancer] Field notes from Cancerland, post Father’s Day edition

In General

All the excitement of JayCon XIII is behind me, along with JayFest and the various auxiliary festivities. This means that I am back to focusing on the difficult details of my life. Including still not having my laptop, and thus missing access to many of my files. I believe the new one arrives tomorrow. It also means the mental and emotional landscape has shifted from a multitude of entertaining distractions to being back at the center of Cancerland. Melancholy prevails.

Appointments

This week I see a trust attorney for some more estate management discussions, and a palliative care doctor to talk about end-of-life planning in detail. I’m also sitting for a print interview, as well as film shoot not connected to Waterloo Productions‘ ongoing Lakeside project. More about these as they unfold.

Life Transitions of the Financial Sort

The house refinance finalized and funded last week. I hadn’t really written about that here while it was ongoing, simply so as not to create problems in the process should the lender Google me for diligence. I’ll say more about this later in a detailed post on end-of-life finances, but the general idea was to reduce the interest rate in order to minimize cash flow going forward.

Likewise, I have begun the process of separation at work, and my last day on regular payroll is currently set to be 7/1. I’ll go on Short Term Disability for a while, then transition to Long Term Disability later in the year. I have a lot to say about this process, but would prefer to see it all play out before I comment publicly. What is clear is that I will go through a period this summer of essentially zero income, which will be scary and tight.

Emotional Ripples

Lisa Costello had a near meltdown a few days ago in which she told me how difficult it was to watch me dismantle my life piece by piece. Which is exactly I am doing. Leaving work, simplifying and shutting down financial accounts, giving away or getting rid of much of the contents of my house, saying good-bye to geographically distant friends as I get the chance to see them, and so forth. I pointed out that dismantling my life on my own terms was itself something of a gift, as it grants the illusion of control and allowed me to arrange things as I see best. Those brave words aside, she’s absolutely right. This process is heart-breaking. My only comfort is that it’s even more heart-breaking when your survivors have to do it all unexpectedly.

Regorafenib Side Effects

Side effects bingo continues. As of today I am in my off week for the drug (21 days on, 7 days off), so the side effects have hopefully peaked for now. Some of the advice we’ve given is that month one is the period of maximal side effects, some advice says month two. In either case, we expect a plateau after the peak, with the possibility of some mild amelioration. In the mean time, yech. My mouth continues swollen and sore. After most meals I brush my teeth with pharmaceutical grade toothpaste, then rinse and gargle with a saltwater solution followed by a baking soda solution. (I tried combining those two at first. Pro tip: Don’t. Just don’t. Trust me on this one thing.) After that I rinse with the lidocaine mouthwash. Let me tell you, go through that a few times and you never want to eat again.

The other overwhelming side effect is the hand-foot syndrome. As of yesterday I was finally seeing some skin breakage, just peeling on my fingers mostly. But the pain in my palms and soles has been quite troublesome. I walk with a cane now, use a disabled parking permit, and spend as little time as possible on my feet. I also wear cotton gloves most of the time, to avoid incidental friction on my hands. Yesterday my feet hurt so badly I thought the skin of my heels had torn free (which is a possible thing on this medication). In related news, the swelling in my scrotum continues, though we’ve managed to mitigate it by having me wear briefs which are slightly too small for me. This gathers and cradles the affected area, which keeps the skin of my thighs from irritating the swelling. Crazy stuff.

I’m also continuing to experience erratic GI function. Admittedly, that’s my ground state these days, but the Regorafenib creates mild constipation on top of everything else. This is pretty much the opposite of what it says on the tin. And my sleep patterns are just weird at the moment. Unless I have a strong amount of social distraction, I will all but pass out by 9 pm. I will then wake up between 2 and 3 am, and usually cannot go back to sleep. Even my friend Lorazepam doesn’t seem to fix this problem. Just lately, I’ve been falling asleep in the afternoons, and fairly deeply at that. What I’m not yet doing is hitting that pathological fatigue that has characterized so much of the rest of my chemotherapy experience over the years.

I see my oncologist next Monday, along with more bloodwork to track my liver functions and overall body chemistry. We’ll have to find out what the second month of Regorafenib brings. I suspect this will depend a lot on how much the side effects diminish this week in the absence of continued further drug dosage.

Tags: , , , , , ,

[events] JayCon done come and gone

JayCon done come and gone. Except for breakfast this morning. And taking [info]fjm to the airport for her trip home, and so forth.

I would call it successful. We had guests from Australia, the UK, Canada, Texas, California, Idaho, Washington and Oregon. We had pizza and cake and cookies. We had before parties and after parties. We had a tiki ceremony.

And now despite no drinking I have the functional equivalent of a hangover.

Also, I was way too busy to take photos, but here’s a couple from others:

Birthday Princess
© 2013 Dierdre S.M.

Blessed be
© 2013 Tamara Kaye Sellman

Thank you to everyone who came to celebrate with and for me. I love you all.

Tags: , , , ,

[conventions|repost] Announcing JayCon XIII – today!

ETA: We will be having my living wake, the JayWake on Saturday, July 27th. This will be a celebration of my life and a giant flip of the bird to my death. Including both a wake and a roast. Watch this space for more details.

Every year, some people tell me that I need to announce JayCon early so they can get it in on their calendars. Every year, some people tell me I need to announce JayCon later, because they don’t plan that far ahead. Sometimes, these are the same people. So starting now, and going on through the spring, I will be reposting this announcement with occasional edits or updates as needed.

In celebration of my natal anniversary, JayCon XIII, my 13th annual 37th birthday party, is Saturday, June 15th, 2013 (a/k/a today) from 2 to 5 pm at the Flying Pie in SE Portland. We’re partying because I was born, and because I have beat cancer again and again and again we may not ever get to do this again.

If you can read this, you’re invited. Prior JayCon experience not required.

Also, if you’re coming from out of town, and you think I might not be aware of that, please contact me. There are some limited capacity extended festivities from Friday to Sunday.

Flying Pie Pizzeria
7804 SE Stark Street
Portland, 97215
(503) 254-2016
http://www.flying-pie.com/
[ Google Maps ]

As is traditional for JayCon, Paul M. Carpentier is specifically not invited.

Tags: , , , , , ,

[personal] JayCon preparty

Last night we had the JayCon preparty at Cartlandia here in SE Portland. That’s a pretty substantial food cart pod with a big central tent into which we fit about twelve or fourteen people for a couple of hours of food and chitchat. Always a good thing.

Today is of course JayCon. That should be loads of fun, as always. By Monday, things will have calmed down, and I won’t know what to do with myself.

Also, it would be nice if I could stabilize my sleep schedule.

Tags: , , ,

[personal|events] On the cusp between JayFest and JayCon

Yesterday evening was JayFest. Which we celebrated in style. It was well-attended, and I think some books got sold. No photos yet, on account of continuing computer issues hereabouts, but there will be. Much fun was had by all, and somehow John Pitts wound up with the Genre car afterwards.

Today is kind of a cusp day. Enjoying the company of [info]fjm. John will be by later, and this evening is a loose group dinner for early and pre-JayCon attendees at Cartlandia, my almost-local food cart pod.

Tomorrow, of course, JayCon XIII with all attendant madness. Which is incidentally Joyce Z.’s real birthday, so she’ll be celebrating there as well.

In other news, today is [info]the_child‘s last day of school. Shortly she will be a freshman no more. Another reason to celebrate.

Tags: , , , ,

[cancer] Field notes from Cancerland, JayFest edition

JayFest

JayFest is tonight at Powell’s Cedar Hills. Some of the folks arriving today are staying over for JayCon, including J.A. Pitts and [info]fjm. From about lunchtime today until after dinner Sunday it’s going to be one nonstop trip to crazytown around here. Next week will be a dead calm sea by comparison.

Story Sale

In the department of good news what cheers me, [info]seanan_mcguire and I have placed our collaborative novella “Hook Agonistes” with Subterranean Online. Go, us!

Estate Matters

As of yesterday, the house refinance has funded. I’m done with that, at an advantageous interest rate and a reduced cash flow requirement. This week, we have met with the accountant, the financial planner and the attorney about various matters as well. Sometime in the next week or so, I will write out in detail the kinds of planning we’re doing, including whys and wherefores. Just don’t have time right now. And, frankly, it’s overwhelming.

Daye Jobbe

I am in the process of leaving work permanently on disability. I have a lot to say about this, but I believe I shall wait until we’re all the way through the process so I can comment from that perspective. My employer continues to be extraordinarily supportive of me in this process, as does my boss, as well as the members of my work group. This does have some fairly staggering implications in terms of me receiving reduced cash flow from disability insurance while seeing my healthcare costs push up by 350% in shifting to COBRA. Again, more on this later when all the ducks have been enrowed.

Regorafenib Side Effects

My not-so-slow side into debilitation continues apace. I am now wearing cotton gloves almost all the time, including in my sleep. Also thick hiking socks over my silky bamboo socks, to cushion my feet. We have bought a new chair that gives me good elevation of the extremities, as well as a ‘zero gee’ posture to deal with the significant back pain which is emerging as a result of me walking with an odd gait due to the foot pain. I am also experiencing swelling in various body parts, including my feet and my scrotum. (That last is no joy, let me assure you.) The day to day stuff is driving me nuts. Yesterday I almost had a meltdown because I could not uncap a pen. Also, I am getting stupider. I can tell this because my performance at Sudoku has declined noticeably in the past two weeks. I use that as one of my basic cognitive self-checks. I’ve also been making an increasing number of stupid logistical mistakes. And my sleep cycle is very messed up. I woke at 2:15 am this morning, finally giving up at 3:00 am — this on top of a 10:00 pm bedtime. So, yeah…

JayCon

Meanwhile, there’s JayCon XIII on Saturday. I’ll be doing my best to enjoy the heck out of all the fuss and bother. Hope you can make one or more of the events between now and then.

Tags: , , , , , , ,

[conventions|repost] Announcing JayCon XIII – only four more days!

ETA: We will be having my living wake, the JayWake on Saturday, July 27th. This will be a celebration of my life and a giant flip of the bird to my death. Including both a wake and a roast. Watch this space for more details.

Every year, some people tell me that I need to announce JayCon early so they can get it in on their calendars. Every year, some people tell me I need to announce JayCon later, because they don’t plan that far ahead. Sometimes, these are the same people. So starting now, and going on through the spring, I will be reposting this announcement with occasional edits or updates as needed.

In celebration of my natal anniversary, JayCon XIII, my 13th annual 37th birthday party, is Saturday, June 15th, 2013 from 2 to 5 pm at the Flying Pie in SE Portland. We’re partying because I was born, and because I have beat cancer again and again and again we may not ever get to do this again.

If you can read this, you’re invited. Prior JayCon experience not required.

Also, if you’re coming from out of town, and you think I might not be aware of that, please contact me. There are some limited capacity extended festivities from Friday to Sunday.

Flying Pie Pizzeria
7804 SE Stark Street
Portland, 97215
(503) 254-2016
http://www.flying-pie.com/
[ Google Maps ]

As is traditional for JayCon, Paul M. Carpentier is specifically not invited.

Tags: , , , , , ,

« Older Posts |