[cancer|personal] The second Johns Hopkins consult, flying home now

Yesterday, I saw a surgical oncologist at Johns Hopkins Hospital. In brief, they confirmed the treatment plan proposed by my doctors in Oregon. That is to say, chemotherapy now with surgery after six sessions, then six more sessions of chemo post-operatively.

I did learn a little more about next stage treatment options, and they recommended an MRI for my pre-surgery scan in order to better look inside the liver which will have grown more fatty on chemo. The surgical oncologist also concurred with the observation that this is likely to come back repeatedly, with the ultimate implications of that, while still pointing out that we should continue to look for cure as much as possible.

Which I will and I have. I do not give up.

More details to come in a day or two, once I unpack the notes and comments from Ace Jordyn and Lisa Costello. Flying home today in the company of Ace, very sadly leaving Lisa behind in Baltimore. I will spend this evening catching up with [info]the_child, who I have not seen in two weeks, and who has started high school while I was gone.

I have various medical appointments through this week, then the port implant surgery on Friday. Chemo begins on Friday, September 21st.

More details to come.

2 thoughts on “[cancer|personal] The second Johns Hopkins consult, flying home now

  1. Ruthie says:

    *Hugs* (((Jay))) I’m glad you and your docs are continuing to look for a cure. My friend’s gram makes Essiac tea. Ask your docs if that’s okay to drink. That and other food medicine. When I get a craving for bad food I sear some portabella mushrooms and garlic. Green tea, kimchee and pro-biotic yogurt iirc are anti-oxidants. Keep up the faith in your friends, family and doctors. You have a wealth of love supporting you.

  2. Stevie says:


    Given the massive amount of information about so called junk DNA which has just become available it is not unreasonable to think that there may be novel therapies emerging in the not too distant future. Anything which helps people understand why your original tumour didn’t want to play nice gives them a different starting point for dealing with its’ descendants…

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