[cancer] Field notes from Cancerland, Rio Hondo edition

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Regorafenib

I’ve spoken to the specialty pharmacy, and my Regorafenib should be arriving in Portland today. To my mild surprise, they are treating this as a pharmaceutical co-pay in line with the insurance company formulary. This is often not the case with specialty pharmacy prescriptions, I’m told. I’ll start the medication next Monday when I’m back in Portland. Apparently, the side effects are a real treat.

The Nebula Awards Weekend

I’m still parsing the Nebula Awards Weekend from an emotional perspective. I’m not hung up on losing the Best Novella Nebula — that’s just the way the game is played. Rather, as I said the other day, I’m struggling with my sense of being on a farewell tour. It really was a terrific weekend in a number of ways, but the reality of my foreshortened mortality is starting to grind me down.

Tension

That same reality of foreshortened mortality is grinding down the people around me as well. This is creating drama among my immediate circle of family and friends. I am very ill-equipped to handle that sort of drama. I dislike it in general, and right now my reserves are stretched so thin that dealing with such things is a profound distraction. There will only be more of this down the road as well all respond to my deepening illness.

Reserves

Those aforementioned reserves really are an issue. I have no depth these days. Anything small can upset me. I don’t have the bandwidth to do everything I want. I frustrate easily, and have trouble tracking and staying with both emotional issues and projects. Right now I cannot tell if this is stress from the new diagnosis, which at some point I’ll integrate, or if this is my new reality. I resent every step of loss.

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12 thoughts on “[cancer] Field notes from Cancerland, Rio Hondo edition”

  1. Alexis says:
    May 22, 2013 at 6:24 am

    I’m sorry Jay. Words are insufficient, but they are all I have to give you. You are always in my thoughts.

  2. Kenneth says:
    May 22, 2013 at 7:27 am

    You may have already seen this somewhere, but it might be a good thing to share with those around you. It’s about complaining, but it may be applicable to drama as well. http://articles.latimes.com/2013/apr/07/opinion/la-oe-0407-silk-ring-theory-20130407

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