[cancer] NIH Day Eight

Not so much to report today. We’re in the lull between the main chemo and the TIL infusion/IL-2 therapy. All the things I was grousing about yesterday got fixed except the toilet problem, and I have hopes of that being fixed today via a supplemental seat.

And while yesterday I was grousing about infrastructure and small things, I want to emphasize a point I’ve made before. The patient focus here at NIH is excellent. Different individuals approach it different ways, but my confidence in my doctors and their medical associates is absolute. These guys are great. I know even as terrible as I’ve felt, there’s a reason for everything. We’re advancing the frontiers of science and working on possibly extending my own life. That’s good enough for me.

On the downside, my chest catheter is giving a lot of difficulty. Infusions work just fine, but blood return has proven almost impossible to achieve. The current thinking is that the lines are twisted, or pressed against the vein in some fashion. Several solutions have been discussed, all of them varying degrees of alarming. It’s possible I’m going to have a quite unpleasant day. I have already requested sedation if we have to go back in and dig around. A lot of sedation.

Other than that, calm before the storm. I’m not over the cyclophosphamide-induced food aversion, but it has been reduced through careful management. The cough has backed off a bit more, too. My research fellow is leaning hard toward the cough being the tail end of a long, slow post-operative infection. To which if true I say “Hallelujah” if true, because it means I don’t have to put up with this crap for the rest of my life.

As always, we shall see.

One thought on “[cancer] NIH Day Eight

  1. Stevie says:

    jay, glad that this has been a not too bad day, as oposed to a good day.

    I’ve only experienced major problems with Portacaths, though I’ve had a fair number of centrals/Hickmans down the years, and never had a problem with them.
    As ever, I extend my good wishes to you!

Comments are closed.